Rohhad Nordic

Rohhad Nordic is a dedicated non-profit organization based in Aalborg, Denmark, focused on supporting individuals and families affected by the rare ROHHAD syndrome. Established in 2024, the association works to raise awareness, provide community support, and fund medical research for this complex condition. Located on Blåkildevej in Aalborg Øst, Rohhad Nordic collaborates internationally through the ROHHAD International Consortium and is a member of Eurordis, the European rare disease organization. The association offers resources, advocacy, and hope to those impacted by ROHHAD, fostering a supportive environment in the Danish region and beyond.